Monday, May 23, 2016

Here we are

It's been a while as usual, but here I sit typing after just having finished my final for Math and realizing i'm almost done with my first year back in college. Two more finals and its official. WHAT?! I have so many emotions going on and it's a little overwhelming which is why I decided to come to my safe haven and try to figure out why I'm feeling so....I don't even know how to describe it.

For reference my sophomore year of high school I dropped out and went straight to get my GED. High school was not for me. I spend the two years I was involved in high school partying and using the campus as a meet up for friends. I took maybe the first quarter of freshmen year seriously and everything from there on out was nothing. If I think back any formal education I last received was from 8th grade. I passed my GED on the first attempt with above average scores, (Not for math) which was surprising to say the least.

Here I am a 30 year old mother going back to college and I had no idea I would enjoy it as much as I am. It has been challenging beyond belief, but the enthusiasm to learn has remained and has carried me thus far and gosh is it rewarding. I know there is such a long road to go, but knowing that I have a year under my belt is indescribable. Life is changing and moving forward and I feel like I'm finally in tune with it. My whole life I have felt like I was swimming against the path that I was supposed to head down. There's been times I didn't even realize there was a path and I was just floating about getting by and letting myself just lay without heading anywhere. I use the term lay both figuratively and literally because depression most days have indeed been spent laying down, but somehow in the middle of my grieving I found this path, my path and it feels amazing walking in it. Gosh does it feel amazing.

As we head into summer I'm looking forward to spending time off of school, but looking forward to the Fall semester. This is our last summer before Natalia officially becomes a full time student as well. She's graduating pre-k June-18th and starts Kinder Aug. Time is moving so quickly for us in regard to her. I feel like she was just born and now she's starting kinder! She's so talkative and outgoing, the complete opposite of me and I'm so happy about that. As a girl I know she's more likely to carry my gene of psychological problems so the fact her personality is complete opposite than mine gives me hope she'll never have to face those demons. I would hate myself if that's one of the things she inherits from me. She's so full of life and eager to get her day started as soon as she wakes up. I can't imagine our life without her and I thank Joshy everyday that he choose her for us. She's growing up to be such an amazing little girl. Here are some updated pictures of us including one of me and Natty for Joshua's angelversary that just passed. She talks about how her big brother lives in heaven and is able to verbalize that she has a brother when asked. So to finalize this post, we've come a LONG way from when I first started this blog and the journey to here wasn't what we envisioned, but we're finding a way to find light in spite of everything. It has taken a while, but we're headed there. Where ever there is.....



 For Natalia's 5th birthday we surprised her with a trip to Disneyland. Here's the video of it :)



It's crazy to think this is where we've ended up. When I first started this blog is was to document my pregnancy with Joshua, then it emerged to document his life while in the NICU and now it's turn to this....What surviving child loss looks like. I never thought years later I would still be writing here and I especially did not know if I was still going to be here to write after Josh passed. I didn't want to be here, I didn't want to live this life, but somehow I've survived and continue to do so. This is my journey. This is our journey, every important milestone has been documented here and I hope to continue to do so. I will continue to do so! What a roller coaster it's been so far, but here we are. 


Friday, January 15, 2016

New year 2016

Happy new year!
Wow. I can't believe it's 2016. Looking back to when I started this blog I can't believe how far it's kept going. My only wish is I would have more time to actually blog. One day I keep saying, but the truth is I'll never blog as often as I wish or as I once did.

I'm on school break right now and go back January 25th. School has been so great for me. It has been difficult, but oh so rewarding. I have never felt like I was going towards something in life until now. In Psychology I learned about Maslow's Hierarchy of needs and everything made sense. While listening to the lecture my professor was giving about each level and how a person can't fulfill their higher purpose until each need is met was, it was life changing. I know that might seem like an exaggeration but it's not. All of the sudden things made sense.

Anyways, that's where I'm at as far as school. In other new's I had upper eyelid surgery in both my eyelids to lift them. I have a lazy right eye that was starting to interfere with my vision and my surgeon decided it would be best to lift both of them. I had the surgery on Jan 6th. The surgery served as a big reminder. I'm ok being in a hospital setting as long as I'm there taking care of someone and not the patient. The surgery was done in the operating room and I was to receive enough med's to just make me "relaxed" but that didn't go so well. I was in the pre op area with my nurse Melissa who was just absolutely wonderful. I told her I was going to school to pursue nursing and she gave me some "tricks" to putting in an IV. I even shared the story about Joshua and she told me about how her friend experienced something similar. The pre-op scene was going great. I wasn't worried or nervous. In fact the nurse and surgeon joked Jonathan looked more nervous than I did like he was getting surgery. All was well and the anesthesiologist came and put the cocktail med's in my IV. I said bye to Jonathan and they wheeled me down to the OR and that my friends is when my beloved PTSD kicked in. I'm not sure if it was a mix of the med's or being wheeled into an OR room again and seeing those big bright lights shining down. They positioned me and everything started rushing back. The birth of Joshua and everything that came with it. All of it. I told the anesthesiologist if the meds would help with anxiety and he said yes they should. He asked if I suffered from anxiety and I began breathing harder. I seriously felt like running out. The meds started kicking in by this point but not enough to keep me from feeling like I couldn't breath and wanting to start sobbing. I told him I did suffer from anxiety and PTSD then then the nurse informed him it was in my records I suffered from panic attacks. He walked on over and who know's what he gave me because I remember the nurse asking me if I felt better and I remember trying to answer back but not being able to then I remember nothing. I woke up in Post Op with J holding my hands and the nurse explaining to him they had to "knock me out" Once I came to he asked if I was ok. First thing I said was I couldn't handle it. It reminded me of and I didn't have to finish the sentence because Jonathan finished it for me.

It has been a bit hard since then. I have buried certain memories and feeling in order to function. In order to survive and in one second all those feelings came back. I'm using these days to re-compose myself. I know it might seem crazy that I'm pursuing a career to hopefully one day lead me to the NICU but it's completely different. I feel comfortable being in a medical setting. Just not as a patient. I want to help and take care of people. This is my path of that I'm certain. January 25th I will began another stepping stone in my journey.

Tuesday, September 29, 2015

Update. Ok, sort of

I know, I know I promised to make this huge big post but I have had no time. I remember saying "oh when I finally get a laptop I'll be able to start blogging again and start taking more pictures" the truth is school has taken over my life. Don't get me wrong. I am actually enjoying it this time around. Maybe because I KNOW what the purpose and long term goal of me going to school will be. The sole use of my laptop has been school. I have done zero picture editing and up till right now, zero blogging. Actually, scratch that. In my English class I had to create a blog and am actually loving that blogging is part of the weekly free write assignment . I'll post the link later here. For now I'll leave you with major stuff that has happened this month. I turned 30. Doesn't feel much different than 29. Am I supposed to feel wiser or something ? In other news, me and Jonathan celebrated our 10 year anniversary. We'e survived 10 years with out killing each other. Incredible. In all honestly, I actually think it is incredible we made it to this milestone. When I read back on the posts of where we were right after josh passing away i'm really amazed we made it through everything. We we were in completely different places and I'm amazed we found ourselves again. We are now a week and a half away from Joshua's birthday and for the first time I am not dreading it. Maybe it's because I'm actually keeping my promise to him and feel as though I'm finally following through on a promise I made not only to him but to myself. I'm keeping his memory alive and following this "calling" that came about through him and because of him. Thats my birthday gift to him. One that I'm actually proud of. Hopefully I find some time to write more on this next week for his birthday because I feel like I'm finally at a OK place with my journey so far.....
Here are some updated pictures us and of course of Natalia, Can you believe she's four!? I feel like it was just yesterday I was posting about being pregnant with our rainbow and now here she is growing like a weed. The kid has such a personality on her. She LOVES talking to people, strangers, friends it doesn't matter. She's confident, sassy and much to her daddy's liking loves superhero's. For halloween she has decided she will be Antman, but much to both of our liking she is a die hard San Francisco Giants fan. I'll add the youtube link of her reacting to them winning the world series last year. She was super excited to go to the parade.















Friday, August 28, 2015

Houston, we have lift off !

I have a laptop again fellow bloggers!
Theres SO much to update on but I  just wanted to make a post THAT I HAVE A LAPTOP ! Even though blogging might be a bit hard to do consistently because I have such a tight schedule ( be ready for updates on the next post) I now have an outlet to express myself and oh is there so much to write about! I have a couple of free minutes to spare before I get ready for school. You read that correctly, I am on my second week of my first year of pre req to (crossing fingers, toes) eventually be able to get accepted into an RN program. Do you guys remember THIS post ? Well I am following through. This is it guys. This is where everything has lead me to. This first semester is just a small tiny step in the long journey I have ahead of me to be able to reach that dream but I have to start somewhere right ? I'll update with a longer post later this weekend. This is a promise. This blog has documented everything from the start of this journey and everything I have written has lead me HERE. I know it's going to be a long and hard road but Joshua's story continues :)

Monday, October 13, 2014

Poop & Pee

I would always read a whole bunch of stuff on how kids say the funniest things. I have learned that to be very true! It seems as natty's vocabulary expands the list of hilarious things she says increases as well. It also very interesting to see a three year old comprehend things and explain them in a "3 year old fashion" sometimes simple & to the point & other times very entertaining. I've actually learned quite a bit from everyday conversations with her. 

I have written before how I hate blogging from my iPad and I still don't have a laptop but I have decided in trying to document these natty-isms I will try to post more often even if it's just a post with the "natty quote of the day" 

So to start things off 

This morning as I'm changing her diaper ( yes, my 3 year old is still not potty trained. That is a whole other post) 

Natalia: mommy I went pee & poop. I went pee in the front of my diaper and poop in the back.
Me: thanks for letting me know baby, and did you know you go pee and poop from two different places ? 
Natalia: *with a very concerned face* WOW! I did not know that, I think that's great! That's why my diaper in the front has pee & the back has poop. 

Stay tuned for more interesting conversations with my 3 year old.

Unrelated to this post and because I haven't posted pictures of my little one in a while here are some pictures :) We bought some stencils,face paint & J was drew them on. 






Monday, October 6, 2014

Five.

I've been obsessing over something for the past two weeks.
It didn't seem like I was obsessing over it to me....till tonight.

As the sun started to set and it started hitting me. REALLY hitting me that tomorrow will be Joshy's FIFTH birthday it dawned on me. I had been obsessing over this one thing to avoid tomorrow. As if that would make it easier. As if keeping my mind on this one thing would make tomorrow not happen. It would make these past 5 years not real. It would make these past 5 years, NOT 5 years.

5 years.
Has it really been 5 years ?....
5 years

It hurts to type that number.
It's such a huge milestone.

5 years ago we had such a huge optimistic view on what life was going to be like that it's frighting almost. I was reading back on the blog to 5 years ago and we were just soooo optimistic. We were sure everything would be fine.  Up till his birth we had already gone through so much, HE had already gone through so much that it seemed like the odds were in our favor. Funny, you would think we would be pessimistic.

Our extended family never really knew just how high risk of a pregnancy Joshua was and just everything that was going on. I think that was pretty evident to his Birthday and when everyone came to the hospital to meet him. I'm sure they had a different image of meeting him than what they actually saw. Some of Jonathan's cousin's girlfriends were pregnant at the time and came to meet him. I remember them walking back into My room holding their belly. I remember the looks on their faces.... I got it. I don't wish our situation on anybody.

Trust me, I got it. Who could imagine what a 1lb 8oz baby would look like ?
Who would want to imagine that ?
Really that was a Goal weight to us. Up till about 2 weeks before he hadn't reached the 1lb mark.

Although all "normal" had been thrown out the window a LONG time before his birth, to us, it was still a very joyous occasion. We, HE had fought so hard just to be born, to have a chance at life outside the womb we were so happy that day.

Yes we weren't expecting to have him on October 7, but we knew we were baking on borrowed time so although his birth DATE was a surprise, we were over the moon he had made it and so although his birthday is hard and sad and so many other things it's also a joyous day.

The day I became a mom.
The day Jonathan became a dad.
The day WE became parents.
The day our little fighter proved A LOT of doctors wrong.
The day my heart grew and filled with love beyond anything I could have ever imagined.

So on October 7th I am reminded of all that.

Our life forever changed and I have said it once and I will say it again, Knowing that we would have the outcome we did I WOULD STILL DO IT ALL OVER AGAIN.

For six months I was honored to be in the presence of the strongest being I have and will ever know.

Happy 5th birthday Joshy.
There's not a day that goes by that I don't think about you.
There isn't a day that goes by that I don't wish you were here.
There isn't a day that goes by that I don't think about what you would look like, what type of little boy you would be.
There isn't a day I don't remember you my king.
Forever mine.
Forever ours.

P.s
In what was a perfect concert lineup, me and your dad had a chance to see both of your songs performed live by both bands.
With You by Linkin Park & Kings & Queens By 30 seconds to Mars
In what was nothing short of what I think a "sign" from you Kings & Queens was performed by Jared Letto to a special needs man.
Part of 'With You' was performed no more than 90 feet from us...... Thank you buddy.

"So even though you’re so close to me
You’re still so distant and I can’t bring you back

It’s true the way I feel
Was promised by your face
The sound of your voice
Painted on my memories
Even if you’re not with me


[Chorus:]
(I’m with you)
You
Now I see keeping everything inside
(with you)
You
Now I see
Even when I close my eyes
(with you)
You
Now I see keeping everything inside
(with you)
You
Now I see even when I close my eyes"






Monday, August 25, 2014

Genie, You're free

In my lifetime I have experienced the sadness and loss of a lot of Great entertainers, artists, stars etc but nothing has hit me so hard than the suicide of Robin Williams. I have never cried for an actor but I cried for Robin. This may sound SO crazy and stupid to a lot of people, for me to be sad & personally shook about his suicide but let me explain.

If you are one of the few people who has followed my journey you are aware I suffer from clinical depression. I have written about it here. I have been very open about it. Its a part of me I hate but have come to terms with. Unless you have personally suffered from clinical depression, you really have no idea how physically, emotionally, just all around painful it is to live with. Mental health is such a taboo subject . People think that someone suffering from clinical depression can just snap out of it, but we can't. For me personally it's a day to day battle. Just in my last post I had written about how I had to go on med's again after being off of them for 6+ months. Jonathan has been with me for almost 9 years and he still doesn't fully get clinical depression. I will have "bad days" when I'm just down & start crying for no reason & when he asks me "what's wrong" and I answer with " I DON'T KNOW, I'M JUST SAD!" he doesn't get it. There's no reason. He has come a long way with understanding it better and I hate that I have put that burden on him, to have to "deal" with that in our relationship. Before me he had no idea about mental health. Unfortunately he has now come to be very aware of what Clinical depression, anxiety, panic attacks, and now PTSD is.

A year or two into our relationship I went into one of my deepest depression episodes. I stayed inside the house for literately 3 months. If he didn't make me eat, I wouldn't. Most of those 3 months were spent inside my room, laying in bed. He didn't get it. How someone could feel so depressed about life that they could just lay in bed for days or weeks and not eat. Not have any desire to live. It was during those months that I started cutting myself. To feel. It helped. During one of those cutting episodes is when I tried committing suicide. I didn't want to live anymore. Living was just painful and I didn't see a reason to continue. Jonathan stayed awake for almost three days guarding me and making sure I didn't succeed. I still don't know how I made it out of that episode. I've had other deep depression episodes and suicide is always on my head during them. Dying is always in my head. I'm not fearful of death. I think it would be liberating to die. Crazy to write that but that's the type of thoughts that go on in my head. Of course I have reason's to live & be "happy" my beautiful daughter but you see, the thoughts that go on in my head because of this disease are like this

- Jonathan would be better off with someone who isn't so socially awkward and weird
- You're a failure as a person. What have you done with your life ?
- Your family would be better off without you. All you are is a burden

This list could be very long because my head is just filled with negative thoughts. Its like a black hole and every day I try to climb out of it to reach some light. Some days I get to climb a little further than others and reach the light. Then there's days, weeks, months that go on and I'm living in the light with the darkness there but the light overcoming it but for whatever reason something happens, it can be something insignificant to some people but to someone with clinical depression it's so different. It a spiraling effect. One small thing leads to a day of sadness to a week until you're so deep into the darkness that suicide seems like the only way you'll be able to be free. Free. Free from pain, from darkness, from suffering and from this unmanageable sadness that you can't explain.

That is why I have mourned Robin as if I knew him. He has always been one of my favorite actors & comedians but his suicide hit so close to home. When I got the breaking news report on my phone my heart sank & as I read that it was from suicide I started crying. I know how it feels to be that deep in your depression that you just want to be free. In the days, weeks following his suicide so much information & so many people have started talking about clinical depression and mental health that it has been overwhelming. Overwhelmingly good & bad. I have seen so many posts with people speaking about their own battle but with those posts also come the negative ones. The ones of people who have no idea what its like to live with clinical depression or mental problems. It got so bad in the days after his suicide that I choose to deactivate my Facebook, I had just gone back on med's and being emotionally unstable having to see every other post be about his suicide and depression was just making my own depression worse not to mention I all of Joshua's preemie friends were getting ready to start Kindergarten and it was just too much.

So that is why the suicide of Robin Williams has been personal to me. 







Genie: "I'm history! No, I'm mythology! Nah, I don't care what I am; I'm free hee! "

May his death open up the dialog of the taboo disease that is depression & addiction. It's an EVER DAY struggle.

Genie: "To be my own master. Such a thing would be greater than all the magic and all the treasures in all the world. But what am I talking about? Let's get real here, that's never gonna happen. Genie, wake up and smell the hummus."

Rest in PEACE Mr.williams, you're free