Friday, December 25, 2009

The roller coaster that is the Nicu

Sooo here's why josh is still not home,
the nicu stay was going great i mean my little man was growing breathing on his own, and exceeding all the dr's all the nurses expectations! He was miracle from the start but doing way better then all the dr's expected! He had graduated from bieng on cpap (a small mask with pressure with oxygen) to nasal canula (little prongs with oxygen) to no oxygen at all, he was starting to breastfeed on no IV's basicly what they like to call a feeder and grower,the dr's were even talking about letting him go home under 5 pounds wow! everything was going great! So Nov 11th joshy started acting wierd not like himself he's usually cranky when he has a wet diaper but this guys wouldnt stop crying me and his nurse amber where trying everything from trying to burp him to changing him turning off the lights everything possible but nothing was working finally he settled down and although i really wanted to stay because something didnt seem right i went home, by the time jonathan got there at his usual time 12:30 joshua had been moved to his own room with his own nurse and was on cpap again with IV line and they had stopped feedings, at this point things were not looking good but not terrible, so jonathan comes home at around 1 and tells me he was looking a little bit sick but that they were keeping an eye on him so to try to get some sleep, i go to sleep to get a call from the resident dr that josh just got some xrays and that it looks like he has some gas in his tummy and that he's looing a little bit sicker, at 4 i get another call from the dr this time telling me that josh is not looking good at all and they are going to have to transport him to childrens hospital and they need my consent, i tell them yes get up and wake up jonathan were on robot mode just getting ready to rush to the hospital to get there in time to see josh get transported right when we get there theyre putting him in the ambulance and we follow right behind get there to the hospital and they tell us to wait in the waiting room seemed like forever the nurse that had helped transport him come out and ask his medical information and tells us josh is very sick he is on morphine because he is in extreme pain and that he's not looking good at all they cant figure out whats wrong and they will probably have to go in for surgery because he belly is getting really big, they wont let us see him for a long time and finally the let us go back there is my beautful bundle of joy, laying in open crib with about 8 dr's sourrounding him and him just laying there he doesnt even look like he's breathing, i wanted to pass out, anything to make this go away, the next couple of hours were waiting and waiting and waiting, we have been in the hospital all day with no answers, finally at around 10 we go home to get a call at around 12 with the surgeon on the phone saying they will have to go in because they cant figure out what is wrong him so once i again i give them consent and tell them whatever they have to do to save him . they call me a couple of hours later that josh is doing good, he had NEC necrotizing entrocolites which means....a little bit of his intestine had died and had to be cut,the surgeon how lucky we were that it was caught early because 20% or more of babies die from this condition on top of that he had a gangrine appendix! this is so rare that his dr that he has had since birth has only hear 2 cases including joshy and she has been practicing medicine for over 25 years! so from then it has been a slow process for josh, ups and downs, couple of steps fowards and a bunch of leaps back, but my chunky monkey is hanging in there, he now wights 5pounds 4 oz and is cuter then ever, he has an iliostomy which means his intestine is out of his belly with a bag over it were his poopy goes into yes it was very scary at first but now im so used to it i even help change the bag, it has become our normal, his lungs have suffered a bit from bieng so sick that he's on oxygen and his little right lung keep collapsing, but i know he'll be okay he's a stong boy my pride and joy. Soo the news for now is he's going into surgery to get reconnected on mid janurary sooner if surgeon will allow ut but he wants him to be more stable before going in there. So we have no discharge date maybe feb but were not sure. but he's doing good getting bigger and starting to smile and stare at objects now, all the nurses love him and all the dr's know him because he keeps them on thier toes, little joshy has been a drama king since the belly and continues to do so, all the nurses love him, im going to have to keep the women away from him when he gets big! hehe he's now full term, his due date was on dec 22. my little miracle that the dr's didnt think was going to be born is now proving all the dr's wrong.

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